Trauma-Informed Care (TIC)

Trauma-Informed Care in Action: Practice Using Trauma-Informed Approaches in Genetics Patients

Studies have shown that children and families with genetic diseases are at higher risk for exposure to trauma. Thus, medical genetics clinics who serve these patients and families play instrumental roles in helping support families in need.

Receive free CME credits for participating in the Trauma-Informed Care in Action: Practice Using Trauma-Informed Approaches in Genetics Patients virtual learning activity. View the webinar here: https://vimeo.com/1077265322

To receive CME credits for this online activity, please complete the post-session evaluation here: https://redcap.link/lx1im8kz.

Disclosure to Learners Enduring

Trauma-Informed Care in the Medical Genetics Clinic

Below is a list of resources developed or compiled by the “geneTIC workgroup” (a workgroup focused on improving the use of trauma-informed care for individuals with genetic diseases and their families)

Resources

• geneTIC Webinar Recorded: 02.23.23
• geneTIC Workbook
• Interactive geneTIC Workbook

Basics of Trauma-Informed Care

Websites

• Adverse Childhood Experiences (ACEs) (cdc.gov)
• Actions 4 ACEs – Helping
• New Jersey Children Heal From Trauma
• The National Child Traumatic Stress Network | (nctsn.org)
• Trauma-Informed Care (aap.org)
• Trauma, Treatment and Resilience (aap.org)
• Trauma-Informed Care – Center for Health Care Strategies (chcs.org)

Fact Sheets

• CDC Vital Signs Infographic (cdc.gov)
• American Academy of Pediatrics (AAP) Infographic

Videos

• Trauma-Informed Care Webinar Series – National Health Care for the Homeless Council (nhchc.org)

Additional Website Resources

• EveryLife Foundation for Rare Diseases (everylifefoundation.org)
• NORD Rare Disease Center of Excellence Database | NORD (rarediseases.org)
• Resource Repository (ReRe) – National Coordinating Center for the Regional Genetics Networks (nccrcg.org)
• Global Genes (globalgenes.org)
• Expecting Health (expectinghealth.org)

Literature

• Sala-Hamrick KJ, Isakson B, De Gonzalez SDC, Cooper A, Buchan J, Aceves J, Van Orton E, Holtz J, Waggoner DM. Trauma-Informed Pediatric Primary Care: Facilitators and Challenges to the Implementation Process. J Behav Health Serv Res. 2021 Jul;48(3):363-381. doi: 10.1007/s11414-020-09741-1. Epub 2021 Jan 7. PMID: 33415693.
• Anyigbo C, Tarini BA, Wang J, Lanier P. Clusters of adverse childhood experiences and unmet need for care coordination. Child Abuse Negl. 2021 Dec;122:105334. doi: 10.1016/j.chiabu.2021.105334. Epub 2021 Sep 24. PMID: 34571356; PMCID: PMC8612971.
• Bethell CD, Solloway MR, Guinosso S, Hassink S, Srivastav A, Ford D, Simpson LA. Prioritizing Possibilities for Child and Family Health: An Agenda to Address Adverse Childhood Experiences and Foster the Social and Emotional Roots of Well-being in Pediatrics. Acad Pediatr. 2017 Sep-Oct;17(7S):S36-S50. doi: 10.1016/j.acap.2017.06.002. PMID: 28865659.
• Kimberg, L., Wheeler, M. (2019). Trauma and Trauma-Informed Care. In: Gerber, M. (eds) Trauma-Informed Healthcare Approaches. Springer, Cham. https://doi.org/10.1007/978-3-030-04342-1_2
• Forkey H, Szilagyi M, Kelly ET, Duffee J; COUNCIL ON FOSTER CARE, ADOPTION, AND KINSHIP CARE, COUNCIL ON COMMUNITY PEDIATRICS, COUNCIL ON CHILD ABUSE AND NEGLECT, COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY HEALTH. Trauma-Informed Care. Pediatrics. 2021 Aug;148(2):e2021052580. doi: 10.1542/peds.2021-052580. PMID: 34312292.
• Strait J, Meagher S. Trauma-Informed Care in Pediatrics: A Developmental Perspective in Twelve Cases with Narratives. Perm J. 2020;24:19.045. doi: 10.7812/TPP/19.045. Epub 2019 Dec 6. PMID: 31852045; PMCID: PMC6907915.
• Rariden C, SmithBattle L, Yoo JH, Cibulka N, Loman D. Screening for Adverse Childhood Experiences: Literature Review and Practice Implications. J Nurse Pract. 2021 Jan;17(1):98-104. doi: 10.1016/j.nurpra.2020.08.002. Epub 2020 Sep 18. PMID: 32963502; PMCID: PMC7498469.